Thursday, May 7, 2009

my neuropathic pain

So, I've just spent the last 6 months in bed with a chronic neuropathic pain disorder. Its been pretty disheartening, the loss of function has affected everyone in the family.
I'm a mum of 4 kids, one has left home, one was born with multiple anomalies, and consequently has special needs. My youngest just started school as my condition began some 15 months ago, so all those people who were saying"what are you going to so with yourself when she's finally at school?", the answer turned out to be, to suffer in pain and gradually give up everything.

It started with abdominal pain, and an unusual period in Jan 08. Feb 08 was unusual as well, and from there the pain stayed. I started on medication, and was referred to a gynaecologist.

It was November before I had any kind of diagnosis, despite having seen two Dr's previously.
It was suggested I had adenomyosis, and that I should have a hysterectomy.

During this time I had tried several types of pain medication, ibuprofen, paracetemol, codine, DHC and Diclofenac. The DHC made me constipated, the Dicolfenac gave me terrible diarrhea, and even though I was having the two meds at the same time, I swung one way or the other. Eventually the Diclofenac caused bleeding in the bowel so I stopeed taking it, it also gave me quite a gut ache, separate to the pain I was already in. None of these medications did anything... initially the DHC seemed to help, but over time my doctor just kept increasing the dosage as it failed to give any relief. I was finally put on morphine, Oxycodon, as surgery was imminent.
I just never recovered. Post surgery pain was out the roof because of the levels of morpine I had already been on, so I don't know if that's what triggered the neuropathic pain or if it was the 10 months of chronic pain before the surgery. Either way it sucks!

The loss of income has been hard, we had big plans for this year, to travel to Swtizerland again with the kids.
I've spent a lot of time online over this time and found a possible way to make some money - from my bed. Too good to be true? who knows, but I'd be silly not to try it. Will keep you posted how that goes, as well as my journey to wellness.

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